Sunday 29 January 2012

President Davis



After a refreshing swim at the gym (bright sunshine but the air temperature is below freezing) I drive back and hear a programme on Radio 4 about the battle of the Alamo (1836). Now this blog has a record of exposing famous people as Welsh but it is a departure to reveal a Welsh presence at a famous event...

So step forward Lewis Johnson of Ystradgynlais who stood shoulder to shoulder - and then died fighting - with Davy Crockett and Jim Bowie at this iconic event in the history of the USA (well, actually they were fighting for the Republic of Texas but let's not split hairs).

We shouldn't be surprised as the Welsh played a huge part in the founding of the US. George Washington no less said that the Welsh made great Americans - I'm afraid what he meant was that they were northern European Protestants without great loyalty to the British crown - and as many as a third of the signatories to the Declaration of Independence were Welsh so they certainly featured strongly among the elite - more on this below.

So what happened to them? There are some desultory Welsh societies in the States but they make no real noise, certainly less than the Irish and Italians for example who are very recognisable groups in the US today.

The reason I believe is that they did so well that they don't feel the need to rally around their old flag and they live comfortably at the top of the meritocratic (or culturally determined - take your pick) American class system. There is some evidence for this theory: for example there are lots of Welsh grandees among of the leaders of the Republican Party in Pennsylvania. I have also previously noted the success of one of my recent ancestors in Arizona (see here).

Another sinister bit of evidence for Welsh hegemony in North America is the disproportionate number of black people with Welsh surnames. This is not always, but usually, because slaves took the names of their owners. And of course the one unambiguously Welsh President over there was Jefferson Davis: President that is of the, ahem, Confederacy (1861 - 1865) which rebelled in the cause of preserving slavery and precipitated one of the bloodiest civil wars in history.

All this might disappoint those who espouse the theory that the Welsh are radical by nature but it's no surprise surely. Like everybody else Welsh people can be radical when the circumstances provoke it but given the opportunity they can ruthlessly seek self-advancement and then protect their success in conservatism. It would be mature to recognise this at a time when the responsibility for our success or failure is increasingly in our own hands following devolution.


Postscript:

I check the Alamo story when I get home and it transpires that Mr Johnson may actually have been a Tennessean. But then reliable sources suggest that Davy Crockett (John Wayne in the 1960 film which he directed) actually surrendered (!) at the Alamo and was then shot out of hand by the 14 year-old Mexican conscripts who had stormed the place at great loss. Best stick to the myth.

Friday 27 January 2012

Cure Or No Cure



If you haven't seen it already take a look at Hafal Expert Patient Trainer Dave Smith's recent article in the Western Mail concerning finding a cure for mental illness (the on-line version can be read here).

Though it's his own view I for one don't have any quarrel with Dave's opinion on this important subject. But it is a matter which many are reluctant to discuss and I'd like to consider why. I think that there are a set of reasons as follows with my comments appended:

People are reluctant to raise people's hopes too much - yes, that is a fair consideration, but we must surely be brave enough to discuss the possibilities with people who have experience of mental illness and with their families. Apart from anything else the people doing the science need the active cooperation of patients for research purposes.

Mental illness has been around for years and yet nothing you could call a cure in clinical terms has been identified for the key mental illnesses - true, but then nobody expected the recent exponential advances in understanding genetics: as Dave says discovery of decisive genetic treatments is getting more and more credible.

Mental illness isn't just a question of genetics or brain chemistry ("nature") but also of life experiences ("nurture")so "cure" is an inappropriate term
- there are a few hard-line exponents of antipsychiatry who think it's all nurture not nature but most of us are honest enough to acknowledge that we aren't sure but it's probably a mixture, varies a lot between illnesses and individual patients, and frankly we don't yet know enough about this. But it is surely right to look at the biochemistry for cure so long as we also give appropriate weight to the psychodynamic therapies which (and here I'm generalising quite a bit) best address the "life experiences" side of things.

Tricky stuff this both scientifically and politically but let's at least discuss it openly and not hide away in the cop-out which says recovery or cure isn't about real health gain but rather just some woolly ideas about coping and adjustment. Good for you, Dave.

Thursday 26 January 2012

Hedd, Perffaith Hedd



To my cousin-once-removed David's funeral out west today, preceded by lunch with my brother and cousin and his wife at Ultracomeda, a deli on Narberth's High Street with a little restaurant attached. The sardines cured in vinegar are very good. We are tentatively approached by other diners we've never met but who turn out to be attending the ceremony and we can share reminiscences from very different perspectives.

Funerals are obviously reminders of mortality but they also have that unique facility of bringing you back in contact in my case with relatives I haven't seen for over 25 years although I had knocked about with them in my teens - it doesn't seem so long ago but suddenly we are all much older! This accentuates the sensation of how fleeting life is but I do not myself find this unpleasant or alarming but rather curiously soothing - you can't really take life too seriously when you realise it's gone in a flash.

But, as Marvell said To His Coy Mistress (circa 1652),

...at my back I always hear
Time's wing├Ęd chariot hurrying near;
And yonder all before us lie
Deserts of vast eternity


- and so you've got to get on with life while you've got the opportunity. This is often called a metaphysical poem but the writer clearly had his mind on the most physical of matters.




Postscript:

As you can see I have two new tom-cats who are so far nameless: any ideas welcome because it would be a shame if they were for ever to be known as the "little b*st*rds" (as in "Hoy there, stop tearing up the furniture you little b*st*rds!").

Friday 20 January 2012

A Tale From 1796


Mary and Charles Lamb

Following my post on Edward Oxford (see here) Hafal's Gail Silver, who is presently moving on from the criminal justice team to join our Time to Change anti-stigma initiative, reminds me that there is another startling historical example of a more civilised attitude to mental illness compared to today...

Mary Lamb, who with her brother Charles published many works but is best known today for their Tales from Shakespeare which is still in print (a snip at £1.99), famously killed her mother while severely disturbed. The legal system in 1796 was not sophisticated about mental illness but it was anything but brutal or thoughtless in this case. Common sense won the day as it was swiftly concluded that Mary should not be punished because she was clearly seriously ill but it was determined reasonably enough that a proportionate degree of security needed to be put in place while she remained a risk. After she had spent three years in a small "madhouse" (not a place of punishment) Charles, who incidentally experienced serious mental illness himself, persuaded the authorities to place her in his care and he successfully supported her thereafter.

There is another point with a modern resonance in this story. Charles certainly paid a price as his sister's carer, sacrificing the potential for his own family life in order to look after her. Now you might hope that modern society would have done a better job for him but some carers today would doubt that as many still have to give up the most basic ambitions for life which the rest of us would see as a right.

Nobody is saying that things were generally better for people coping with mental illness in past times but these stories do give the lie to the idea that society in all respects becomes more caring or compassionate as time goes on. There is definitely an ugliness in our modern legal system which says that somebody must be made to suffer when tragedy strikes even when nobody, if the matter is looked at rationally, can fairly be held responsible.

And, let's be quite clear, this modern approach does not make anybody safer. On the contrary people with a mental illness are made more wary of seeking help if they believe they will be treated unfairly - and that increases risk.

Thursday 19 January 2012

The English Patient



Interesting bit of news today that the Royal College of Nursing has come out against the UK Coalition Government’s reforms of the English NHS (see the story here). It seems likely that this will not prevent the legislation proceeding and the changes are already substantially in hand - but it must be worrying for the Government that its plans are still unpopular with health professionals even after the legislation was substantially watered down last year. English Health Secretary Andrew Lansley (above) can't be sleeping very well and must be a candidate for the chop if the Prime Minister reshuffles.

It might be tempting for the Welsh Government to feel a bit smug about all this. In a sense the last Welsh Government went in the opposite direction to the prevailing English approach (which was certainly cross-party - the last UK Labour government was also very firmly committed to the same kind of reforms) by dismantling the last vestiges of the commissioner/provider split which never really got going in Wales both because the old LHBs were absurdly small and also because none of the successive devolved governments have really had their heart in that approach.

But there is a need for some hard thinking about this in Wales. Rightly or wrongly the prevailing model for public services in the EU and more widely in the Western democracies is moving away from top-down delivery and towards a flexible approach in which consumers can exercise significant choice and control. What is Wales’ answer to this? Can the Welsh NHS hold out with a mid 20th Century model as others develop a 21st Century model? I doubt it: we need to heed the winds of change.

However, that is not an argument for aping the changes being made in England where, arguably, the watering down of the legislation removed the opportunities for cost-efficient use of market forces but will still cause huge disruption. Further, the English plan does not really empower patients but rather GPs - and large groups of them not individual practices - so the idea that the GP can order up the English patient's choice of care package is not really a credible vision in the near future.

It would be good to see the Welsh Government open a conversation with consumers of health and social services about finding a Welsh solution to this matter - and I don't mean some kind of nebulous commitment to "listening to patients" which all governments have always pledged to do.

Interestingly the new mental health legislation in Wales could put consumers of mental health services in a good position to take more control. The universal, holistic Care and Treatment Plans which will be rolled out from June would make an excellent platform for giving patients control and choice over their care in the future.

We are a long way from handing control of the budget for delivery of those Plans to patients or their doctors or Care Coordinators (though people already have significant theoretical legal rights over their choice of social care) but in the shorter term it is vital that the NHS and local authorities start to use the Plans as the single means of justifying all secondary mental health services.

If you could match the funding to individual Plans (and I mean all the funding for secondary mental health services - about 80% of all mental health funding - not just some small change) then you would immediately have a transparent means of ensuring cost-efficiency and, in the future, you would have the means to hand over some control. However, I haven’t yet detected any sign of that kind of joined-up thinking - it's not really even on the agenda in Wales - so we’ll need to work hard to get the message across.

Friday 13 January 2012

Horse Pills



Last chance to influence the Code of Practice for Parts 2 and 3 of the Mental Health Measure! Honestly this is more important than it sounds so follow this link and get an email off to the Government before Monday...

It's been a torrid week. On Monday my cat Dusty finally succumbed to old age and Blog Towers is consequently desolate without her friendly and reassuring presence. I particularly miss the way I could go about my business around the house and the cat did likewise without mutual interference - unlike a dog whose needy gaze follows you around intrusively. We will get a replacement soon, or more likely a pair.

Meanwhile, and possibly connected, I have been afflicted by gout in my big toe throughout the week. On this occasion the horse pills prescribed for it (a ferocious anti-inflammatory called Indomethacin) don't provide instant relief but I am banking on a peaceful weekend plus application of a bag of frozen peas (prescribed by Hafal Deputy Chief Exec Alun Thomas) to see it off.

I have previously remarked that the two epicentres for gout in the UK are affluent Surrey and somewhat less affluent Merthyr Tydfil. I have also recently read that the only other beast known to have suffered from gout apart from humans was the biggest Tyrannosaurus Rex ever found. She is called Sue and can be seen in the Natural History Museum in Chicago (picture below). Trust me, you really would not have wanted to run into her when her toe was playing up.

Friday 6 January 2012

Zealous Newshounds



After a few days back in the office this seems a good moment to reflect on what the coming year holds for people with a serious mental illness and their families. Fortunately I don't need to work all that out for myself because those zealous newshounds of our very own Grub Street, aka Mental Health Wales, have done the work for me...

Clearly the biggest milestone of 2012 will be the implementation of the Mental Health (Wales) Measure. The Measure gives vital new rights to service users which could greatly enhance their opportunities for recovery. At the heart of the Measure is a significant new right for users of secondary mental health services to a comprehensive Care and Treatment Plan covering: accommodation; education and training; finance and money; medical and other forms of treatment, including psychological interventions; parenting or caring relationships; personal care and physical well-being; social, cultural and spiritual; and work and occupation. This means that service users will now have the opportunity to take a holistic approach to their recovery and set goals in all areas of their lives.

This key new right is backed up by new rights to advocacy for all in-patients, not just those subject to the Mental Health Act; a right for those discharged from services to reaccess services in a timely way; and by a requirement for Health and Social Services to agree a standard for services at primary care.

Mental Health Wales asks rhetorically whether mental health services will simply pay lip service to the new law or will there be a sea change in service delivery, with a new focus on delivering individuals’ care plans.

I don't know the answer to that but it's a fair guess that we won't see big changes if we sit back and see what happens. There are many skilled and committed managers in our mental health services but they won't be able to revolutionise services without the encouragement and active engagement of the consumers of those services. That's why the key mass membership consumer organisations Hafal and Bipolar UK (formerly MDF) are committed to working with our friends in the Mental Health Foundation on a campaign to promote positive delivery of the Measure. This will certainly be the major focus of our campaigning in 2012 - so watch this space!

Other key issues which Mental Health Wales has highlighted are...

· The Welsh Government will be consulting on its new Strategy for mental health early in the year.

· Claimants in receipt of Incapacity Benefit will continue to be migrated to the new Employment Support Allowance benefit – a process which began in spring 2011 and is due to be completed in 2014.

· "Time to Change", a three-year anti-discrimination campaign run in partnership by mental health charities Gofal, Hafal and Mind Cymru, will be launched.

· A study published in 2011 found that only 1 in 10 prisoners with psychosis are receiving treatment for their illnesses in prison, suggesting that the UK Government’s plans to divert people with mental health problems away from the criminal justice system are not working. We will have to get stuck into this worrying issue.



Postscript:

Driving to work this morning I gain a little insight into the psychology of the Prime Minister. In an interview on Radio 4 he is asked which actor he thinks might play him in a future film with the teasing suggestion of Malcolm McDowell reprising his role as Flashman. Cameron refers instead, and approvingly, to the obscure Lindsay Anderson film "If" (1968) in which McDowell plays a rebellious public schoolboy acting out a fantasy about machine-gunning the teaching staff and assorted big-wigs on Speech Day. In case you are worried about the mental stability of the PM you may be reassured to know that this is something which many or most public schoolboys have fantasised about.


Thursday 5 January 2012

Eloquent



Congratulations to Kyle Thomas at Hafal Swansea for his eloquent interview on young people's problems following publication of the Prince's Trust's Youth Index 2012.

See the ITV news item here and link to the report via Hafal's Young People's Information Hub here.

Euthanasia Enthusiasts



Supporters of assisted suicide have published a report which they commissioned (see the BBC story here).

There isn't an official Hafal position on this. Our Trustees, the majority of whom are people with personal experience of mental illness, had a very good discussion on the matter a few months ago and, unsurprisingly, there were varying views.

We can all readily think of both theoretical and actual circumstances where a person seeking assistance to take their own life by reason of pain and misery might be unhelpfully disempowered by the present law which forbids such assistance. But that does not mean that the law should be changed. The numbers of people affected by such circumstances are few - indeed in places where assisted suicide is permitted there are not large numbers making use of it - but there is a vast number of vulnerable people who would be deeply affected by a signal from the government that suicide was officially supported as an option for people who suffer serious illnesses.

Opponents of assisted suicide routinely point to the pressure which might be applied to physically frail people and that is indeed an important consideration. But there is a much greater danger that a change in the law could affect people with a serious mental illness. Hafal's staff and volunteers work tirelessly to reduce suicides among our client group - a difficult task when some 10% of people with schizophrenia or bipolar tragically take their lives - and an important part of our therapeutic approach is to show that there is always a better choice than suicide. That approach will be harder to uphold if, in direct contradiction, the government were to signal that suicide is a fair enough option to the extent that it's okay for other people to help achieve it.

Don't get me wrong, I'm not arguing to criminalise suicide (the 1961 Suicide Act decriminalised suicide but also explicitly made it an offence to assist suicide) but that doesn't mean that suicide is "okay". I sincerely believe that a change in the law would result in more suicides by people with a mental illness, not so much because they would avail themselves of assistance (though that could also happen - some "respectable" euthanasia enthusiasts have helped mentally ill people to commit suicide) but because they would see that the government agrees that it is a fair enough option.

There are other sinister aspects to this. I see that drugs advocated for euthanasia in Australia (I'm not going to name them) have been noted by troubled young people there who have then used them to take their own lives - drugs which incidentally are also used to execute people in other parts of the world.

It is also very noticeable that, as much as the argument for euthanasia attracts the sympathy of some decent folk trying to help suffering people, it also attracts a nasty mix of maverick doctors, eugenicists, and macabre death-obsessives - and unfortunately no legislation or procedure will easily distinguish one from the other.

There is a vast risk of terrible if unintended consequences which well-meaning advocates of assisted suicide need to wake up to. I support the BMA and others who understand the issues clearly in resisting the legalisation of assisted suicide.

Sunday 1 January 2012

Dickens vs Olympics



Happy New Year!

To the Old Vic on New Year's Eve to see Celia Imrie and other premier division thespians reprising Michael Frayn's Noises Off, his farce about actors producing a farce. This is a neat satire both on repertory theatre and on 20C British farce which the prestigious cast pulls off well if not quite fluently. It really is demanding to play actors rehearsing a play and then to play those actors playing that play badly, if you get me, and they may have needed more time to get this right though there is plenty to laugh at.

I am presently beholden to the Frayn household for my cultural diet as I am reading his wife Claire Tomalin's new biography Charles Dickens - A Life which is excellent. It's going to be all Dickens in 2012 (forget the Olympics) as it's his bicentenary which is a good thing as he has plenty to teach us today. I was particularly intrigued to find that he explored and briefly practised an early form of psychoanalysis in which he examined dreams and the effects of traumatic events in early life through hypnotism and dialogue - I will come back in future posts to this and other important issues concerning mental illness which Dickens touched upon.

New Year's day finds me cooking sausages on the beach at West Wittering, Sussex, with my friend Nick Jarman. This has become an annual tradition but it is sorely tested today by a massive rainstorm which sends everybody running for their cars. But we persevere and get the job done. The trick is to place the camping stove in a big cardboard box so that there is no breeze wafting the flame from your frying pan - this way the cooking takes little time and you can eat before the symptoms of exposure set in.